The last few months have been a whirlwind. Since I posted last (in October) so much has happened. Thanksgiving & Christmas came and went, I was called as the Relief Society president for my church, David has had numerous health problems we've been trying to get to the bottom of, and Dan and I have once again been seeking help with our fertility issues and have been trying to have another baby. All of this in 2 months...yikes! No wonder I haven't had time to post on my blog. I barely have time to breathe let alone sit for a few minutes and update my life.
A few months ago, David had some abnormal bruises on his face that wouldn't go away. They were there for at least 3 weeks, and the doctor suggested we have him looked at by a hematologist. They were concerned about leukemia, hemophilia or possibly a clotting disorder. He had extensive blood work done and his results were all across the board. He tested negative for leukemia but one test showed he had a bleeding disorder (hemophilia), the other tests showed he had a clotting disorder. After thoughtful consideration, the hematologist decided that we should go back in March and have him retested. Sometimes when children have been sick with a virus, their results come back skewed and the doctor feels that's what happened with David. So, we'll head back in March and try to figure out what's going on.
We thought all was well until a few weeks ago David's eyes started rolling to the back of his head. The episodes would last 3-5 seconds and it really agitated the poor thing. Our doctor had us come in and be checked out, and she immediately sent him to have an EEG, CT scan, and today he had the MRI. The EEG and CT scan came back negative and we're still waiting for the results of the MRI. The neurologist diagnosed him with a neurological condition called Paroxysmal Tonic Upgaze, (a rare eye disorder where the patient has periods of upward deviated eyes with neck flexion involving a downward pointing chin to try to compensate for the abnormal eye position). The condition is benign and will improve in the future - most likely by the age of 3 or so. He hasn't had an episode for a few weeks so we're looking at that as a good sign.
He's going to be fine and I'm not too concerned anymore, knowing that it's benign and doesn't hurt him. It's just frustrating to have to be dealing with this right now. He has been a trooper and is so well behaved at the doctor's visits. All the doctors are shocked at how well he sits still and lets them draw his blood, check his ears, etc. He's a good boy!
Here is a picture from this morning at his MRI...right before he went under anesthesia.
We had a great Halloween. My friend Mallory and I threw a Halloween party at our house for some of our friends. Our church had a trunk-or-treat activity where David got all the candy he could ever want. Man, that kid loves sugar!





Dan, David, & I spent Christmas here in VA. We missed being with our families in Utah & CA, but loved being here at home and watching David open all his fun presents. We had a low key Christmas and tried not to go too crazy with presents. It's hard though when you have an 18 month old who loves toys!


Helping decorate the tree. We had to put all the lame stuffed animal ornaments at the bottom so he wouldn't break the nice ones.
That's about all the blogging I'm able to do for one day. I need to go take care of some Relief Society stuff and get ready to teach piano lessons for the day. Life is always full of adventures! Before I leave though, I must post one more picture of the cutest boy in America.





10 comments:
Agree? How could I not agree?!!! He is BEAUTIFUL!! ;)
Merianne- I am so sorry to hear about David's issues, we will keep him in our prayers!
He is adorable. I hope and pray your little boy gets better soon and taht doctors will be able to tell you what was wrong this winter.
He is so cute! And I can't believe he is already 18 months. What a scare you must have been going through the last few months. My heart really goes out to you. I hope all the incoming tests come back fine. Love you!
Hey Mer and Dan,
great pictures, hope all is well with your boy and good luck with the fertility thing. You are in our prayers.....I should say good luck with the RS calling, but you'll do great I'm sure.
Wow!! What an update. I can't believe you are the new RS president. I can't imagine that responsibility but also can't think of anyone who could do it better than you. Good luck with that sweet little David! I can't believe everyting that is going on with him! Keep us posted! Miss you guys!
Hi!
I would like to talk to you about an article I wrote that, being a parent, I think you would enjoy (on early childhood education). I'd love it if you could drop me an email quick so I can give you more details if you're interested or if you were interested in new content for your blog.
Emily
epatterson@primroseschools.com
Hi Merianne,
Sorry to hear about your little guy,
He really is adorable! just thought I would share with you that my brother also has hemophilia. He was diagnosed when he was about 8 years old, my mom is in your ward (Silvia Salazar) I'm sure she would love to chat with you if you have any questions. Hope the Dr. can give you guys more answers soon.
I'm so sorry about all you have been going through. YIKES! I hope all is progressing well for all of you. It was so good to see you in December and January (or was it February)? Anyway, I miss you and really hope things are going smoothly for you these days!
Wow, there's so much I want to comment on - first of all, Relief Society president! Wow, seriously, that's a big calling and I bet you are doing great at it. I'm glad that David's condition is probably benign - that helps a mommy breathe easier. he looked like such a sweetie just before his MRI scan. That last picture of him was so cute! I'm glad you guys are doing well. Oh yeah, and I loved his devil costume!
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